Health Needs Assessment for people living with neurological conditions in Lincolnshire – PARTICIPANTS NEEDED’

The Healthy Ageing Research Group (HARG) from the School of Health and Social Care and have been asked by the Public Health Division, Lincolnshire County Council to undertake a health needs assessment for people with neurological conditions (including migraine, epilepsy etc). The purpose of a health needs assessment is to understand the current health needs and health inequalities of people with neurological conditions in Lincolnshire; how effective current service provision is in meeting their needs, and to identify gaps and limitations in service provision, as well as examples of effective provision and good practice.

As part of this project, we are seeking the views of key stakeholders including:

  1. People living with neurological conditions
  2. Carers for people living with neurological conditions
  3. Voluntary Sector Organisations
  4. Medical/ Allied Health Professional

Further information about the project is detailed below in the ‘project information sheet’, as well as information about what you should do next if you decide to take part.

Your participation is entirely voluntary and if you decide to take part, the information you provide will be used to inform the development of the health needs assessment.  Your evaluation of health services and ideas for future development will be anonymised.

IF YOU WOULD LIKE TO TAKE PART AND WOULD PREFER TO COMPLETE A PAPER/POSTAL COPY OF THE SURVEY,

IF YOU WOULD LIKE TO TAKE PART BUT NEED HELP TO COMPLETE THE SURVEY,

IF YOU WOULD TO DISCUSS THIS PROJECT WITH SOMEONE BEFORE DECIDING WHETHER TO TAKE PART,

PLEASE CONTACT: Thomas George tgeorge@lincoln.ac.uk 01522 837496.

If you have any queries or questions, please do not hesitate to contact us.

PROJECT INFORMATION SHEET:  Developing a Health Needs Assessment for People living with neurological conditions in Lincolnshire

Introduction

The School of Health and Social Care at the University of Lincoln has been asked by the Public Health Division, Lincolnshire County Council, to undertake a Health Needs Assessment for neurological conditions in Lincolnshire.  The purpose of a health needs assessment is to systematically assess the health needs of adults with neurological conditions in the county of Lincolnshire, identify gaps in current service provision and make recommendations to address any unmet need and reduce health inequalities.  As part of this work, we would like to ask you to consider taking part in an on line survey as your views and experiences are important to us.  We appreciate your interest in this study as we believe your involvement will help us to understand the experience of people in Lincolnshire who are living with neurological conditions.

What does taking part involve?

You are being invited to complete an on line survey which should take no longer than 30 minutes to complete.   The survey will ask you some questions about your experiences of neurological conditions, as well as your views about the range of services and supports available for people living with a neurological diagnosis. When the health needs assessment report is published, you will have an opportunity to receive a copy of the report.

Do I have to take part?

It is entirely up to you whether you wish to take part in the study.  As a research team, we are not in a position to change current health provision, but your participation may help to highlight gaps in current services which could inform and shape future health development plans.

You can choose to withdraw your interest or consent to take part at any time, without giving any reason, and your data will be withdrawn from the study.  However, we would wish you to note that once the data has been analysed (expected by end December 2017), it will not be possible to withdraw individual data as these are anonymised.

Please do feel free to discuss your potential participation with your family and friends.   If you have any further questions about the project, you can also contact:  Thomas George tgeorge@lincoln.ac.uk  01522 837496) and Mo Ray (mray@lincoln.ac.uk   01522 886289)

What are the possible risks of taking part?

While there are no obvious risks associated with completing an on-line survey, responding to questions may cause you to feel upset or worried.  Sources of support and advice are included as part of the online survey, should you wish to access further help.

What are the possible benefits of taking part? 

There are no immediate personal benefits to taking part.  However, you will have the opportunity to express your views on an important topic, which will result in recommendations being made about current provision for neurological conditions in Lincolnshire.

What will happen to the information that I provide?

Your responses will be analysed and added to other interviews.  We will identify key themes and patterns from the survey, to gain a deeper understanding of the experience of stakeholders in Lincolnshire who provide services for people living with specific neurological conditions, or, neurological conditions in general.  The results of the survey will also be added to other types of research (for example, statistical data, survey responses from people living with neurological conditions, carers, and health care professionals).

All survey responses will be stored electronically on a password protected computer, in a locked office, at the University of Lincoln, Brayford Campus. Physical hard copies of interviews will be stored at the University of Lincoln, in a locked metal filing cabinet which only the immediate research team will have access to. All files will be held for seven years after study completion and then destroyed. Paper copies will be shredded and electronic copies deleted.

The research findings will be combined with other data to form a health needs analysis.  This will be presented in the form of a written report which will be available in the spring, 2018.  It may be that the work we undertake is presented at a conference or is written up in an article and published.

Will my taking part in the study be kept confidential?

Any information you provide giving your views about health care services will be carefully anonymised so that you cannot be identified.  All of the survey responses will remain confidential.  A consent form which details what you are agreeing to by taking part in the survey is included at the beginning of the survey.

Who has reviewed the study?

This study has been reviewed by the Ethics Committee for the School of Health and Social Care.

 

What if I have a complaint or concern?

If you have any complaints or concerns, you are free to express them. If you have any complaints or concerns about the study, you are very welcome to contact the Chair of the ethics committee in the School of Health and Social Care. The details are below:

Dr. Leslie Hicks, Chair, School of Health and Social Care Ethics Committee.

University of Lincoln

School of Health & Social Care

Brayford Pool

Lincoln

LN6 7TS

 

I WANT TO TAKE PART – what do I do next?

 

Please follow the online instructions below in order to start the survey. Please be sure to click the ‘submit’ button on completion.

Survey links here

  1. People living with neurological conditions

https://unioflincoln.eu.qualtrics.com/jfe/form/SV_5c2GkBn2UPSwA4d2

 

2. Carers

https://unioflincoln.eu.qualtrics.com/jfe/form/SV_6gwYVxTaSroICwd

 

  3. Voluntary Sector

https://unioflincoln.eu.qualtrics.com/jfe/form/SV_e4EwKaxMaFoLect

 

  4. Medical/ Allied Health Professionals

https://unioflincoln.eu.qualtrics.com/jfe/form/SV_6YBSZaFJhEHeUfz

 

We do apologise in advance for any cross posting that may occur however we would like to maximise the reach of this survey across Lincolnshire to hear as many views and experiences as possible. Please feel free to share this survey with anyone else who you feel this may be relevant to. Your contribution is greatly appreciated.

This survey will close on Monday 29th January 2018.

Thank you and best wishes,

HARG

School of Health and Social Care